Friday, June 8, 2007
Collection a Success
What a relief! The collection of stem cells has been a success - they collected 4 million today so that gives us 1 million over the mark. Dave's pretty happy as that means no more growth factor shots. We can now have a quiet weekend; he only needs to have lab draws every day. They do that through his Hickman catheter which makes it fast and painless. We might even get to see some Seattle attractions if he feels up to it. After having such a busy week, he wears out pretty fast.
Thursday, June 7, 2007
Trouble with comments
I understand people are having a difficult time commenting. It seems to work if you send your comment as an anonymous sender and just sign your name at the end of your comment. Thanks
Making Progress
Another day of stem cell harvesting, and they have now collected 2.5 million stems cells (the goal being 5 million). We are pretty excited about that. The day again started at 7:30 with lab, followed by platelet infusion. Dave again had a reaction to the platelets even after being pre-medicated with Benadryl. Next time they will pre-medicate him with both Benadryl and a steroid, and will infuse the platelets slower. Sure hope that helps. He is having a blood transfusion now and should be done shortly. It sure makes for long days. Tomorrow is basically the same schedule and we sure are hoping they can harvest the remaining 2.5 million; it would really be nice to have a break this weekend, but we will do whatever it takes!
Wednesday, June 6, 2007
Too Tired
Will make this post short, as we are both really tired! Dave had his first stem harvest today and it was an amazing process. I'll post some pictures tomorrow. The day started out at 7 a.m. with lab, growth factor shots, transfusion of platelets, harvesting stem cells, blood transfusion, more shots. Everything actually went well, but Dave reacted to the transfusion of platelets and developed hives. They administered Benadryl IV along with steroids and he did fine. I understand that isn't uncommon. He will now be pre-medicated before they give him platelets. Last night he also developed quite severe bone pain (a side-effect of the growth factor shots), but it's controlled with pain medication. Tomorrow, basically he will do the same thing and, hopefully, collect more stem cells as today wasn't too profitable. I was so happy to see Brenda Howke today who is here with her 3 yr. old daughter, Shelby, who has leukemia. Brenda is Steve Howke's wife and they are Whitefish people also! It was so good to see a familiar face and to hear that Shelby is doing well.
Tuesday, June 5, 2007
Mailing Address
We have had quite a few requests for our mailing address so here it is:
Residence Inn by Marriott; 800 Fairview Ave. North; Suite 201; Seattle, WA 98109
Phone #(206)624-6000; suite 201
Residence Inn by Marriott; 800 Fairview Ave. North; Suite 201; Seattle, WA 98109
Phone #(206)624-6000; suite 201
Right on Track
Things are progressing fast and today was a whirlwind of appointments. After having lab draw at 9:30, the next stop was to the clinic nurse for administration of 3 Neupogen (growth factor) injections. We then met with the nutritionist where we got an A+!!! Nothing like being graded on what I fix for Dave's dinner! I then went to a class on food preparation and safety while Dave went to the hotel for a break and to spend a little time with Ripley. He met up with me at 1:00 for a "Managing Care at Home" class, which was 2 hrs. of mind-boggling information. It's a good thing they gave handouts, or we would really be in rough shape! Then onto Dave's last appointment of the day, which was a pulmonary function test, he did well with that also. I did have a surprise waiting for Dave when he was through, as I managed to get him a free ticket to the Mariner's game tonight from the cancer center. Wow - was he ever happy about that! The SCCA occasionally gets free "suite" tickets so that immunosuppressed patients may attend a Mariner's game and not be in the huge crowd. Dave was able to go with a wonderful couple we met who are from Spokane. I elected to stay home with Ripley as he had been alone for most of the day. That's where Dave is right now and I know he is enjoying every minute of it. It's nice to have a little normalcy. Tomorrow is a HUGE DAY and a step in the right direction - they will start to harvest his stem cells. This procedure is called apheresis and takes approximately 3 hours. It may take several days of apheresis to collect enough stem cells (5 million) for the transplant. He will continue daily blood draws and growth factor shots during this phase.
Monday, June 4, 2007
Moving Right Along
Things are actually happening faster than we expected. While in a meeting with the social worker today, our nurse interrupted us to let us know that Dave needed to go back to the lab because his blood counts were actually going up (a good sign), and it looks promising that they will start to harvest his stem cells within the next few days. We really didn't expect that until the end of the week, if even then. His CD34 (growth factor)is a little low so Dave will be receiving 2 Neupogen (growth factor) shots twice daily until that reaches the appropriate level. He did receive 1 unit of blood today as his hematocrit was also a little low. It is just amazing how thorough they are - we feel real good about that. Great news is that he has gained another 3 lbs! He's starting to look more like his "old self" again. His attitude still remains positive and even with "chemo brain" he still has a good sense of humor. Just a reminder that you may post a comment if you would like. You will see a link "comments" after each entry. We love hearing from everyone. Thank you so much!
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