Tuesday, July 10, 2007
Day of Review and Teaching
Today was the last day of Dave's palifermin, so that is behind us for now. He will receive that drug again after his TBI and chemotherapy. It's been a busy day with lab at 8:45, PT (physical therapy) at 9, infusion of palifermin at 11, chemo teaching 2 p.m., & CADD Prizm VIP pump class at 3 p.m. (Dave didn't attend the pump class, but I did). The pump will be used to infuse hydration and/or medication. Hydration will be administered each day of TBI (total body irridation) through Dave's Hickman catheter (port in his chest). He will be on the pump for approx. 10 hrs. each time. This is done here at the hotel, and I will be the one in charge of giving him his hydration! Talk about trust!! We will be fine as long as he doesn't try to tell me how to do it!!! Once a "chief" always a "chief"! I also will take charge of all his meds, which consist of 15 different meds on a scheduled basis, and 9 different meds on a PRN (as needed) basis. That is going to be a challenge in itself. Tomorrow we will walk to the SCCA to catch the shuttle at 11:15 a.m. to the Univ. of WA Hospital, TBI is at noon and should take approx. 30 min. We will then catch the shuttle back to SCCA for an appointment with the pharmacist and lab draw at 1:15. Our next appointment is at 2 p.m. meeting with our "team". We the have a break until another walk up to SCCA, catch the shuttle to the hospital for 2nd TBI at 6 p.m. followed by a shuttle ride back to SCCA and walk back to our hotel where I will administer his hydration. If Dave doesn't feel well, the hotel shuttle will come and pick us up. This goes on for the next 4 days with a few changes in the schedule. I apologize if this is boring, but it sure helps me sort out the day by recording it. Dave came back from physical therapy today with positive news; his neuropathy is getting better in his feet!!! His movement is improved and his numbness is less. It's nice getting positive results!
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First thing - no information you ever give is boring, we read and re-read it, just to keep up on what is going on. Boy, you guys have a busy schedule the next few days. We'll double the prayers! Things seem to be moving right along and before you know it, you two will be back home and we'll be having a bbq and cathing up on old times! Doesn't that sound good!? We are looking forward to seeing you two on the 19th! Can't wait! Till then friends, you're in our thoughts and prayers daily. love, Orland & Jan
ReplyDeleteDear friends,
ReplyDeleteDavid, you couldn't be in better hands than Jennifer's. I imagine she will be going for her medical degree when you get back. Take care, both of you!!!! love, joey
Dave and Jennifer, now the "fun" begins. With all the running around you guys are doing, I'm surprised you have anytime to write. Jennifer you will do fine with the infusion pump. They are nothing like the complex ones the hospital uses and are very portable with the little backpack they give you. Looks like you both are getting lots of support. Good luck on the start of your journey.
ReplyDeleteAnn and I are doing fine. We have been home 10 days and it seems like we have been here a month. Lots of catching up to do; no maid service (Ann hates that part). We walk every day and try to find new places to walk. Lake Union is the best. Ann and GlenH